On Edward

Two weeks ago, I write a sweet little post on My Louis. A few days later, I shared a huge update about Nasko living as a missionary. After composing these posts, I told myself I needed to write about Edward next, just to make things fair (lest my children read this in ten years and think I was playing favorites!).

In true attention-seeking, adorable-Edward fashion, the child gave me PLENTY of material to use in his post. So here is a bit about our past month with Edward:

Special needs adoption blog.

For a couple weeks, we noticed Edward was making strange motions with his head and neck. Chance mentioned it to me, and I just assumed Edward needed a visit with the chiropractor. But as I began to observe him, the motions became more and more pronounced. Eventually, they were interfering with Edward's daily functions.

I attempted to schedule an appointment with Edward's pediatrician and neurologist, but no one seemed too concerned about what I was describing. Finally, I captured a brief movie of the tics and posted it on my Facebook page.

Everyone there was concerned!


Within a couple hours, Edward and I were checked into the ER, having blood work done. The doctors could not find an immediate cause for these tics, but agreed they did not appear to be seizures.

They discharged us with a neurology appointment (which got pushed back to late November!!) and the suggestion of more sleep and less stress for Edward.

Since THAT was rather unlikely here, Chance and I continued with our plans and headed to Houston, TX for a work conference and a few days away. Louis and Edward did marvelously as they bounced between grandparents and my best friend. Edward's tics did become more severe, but they didn't seem to bother him much.

Last Thursday, as Chance and I were boarding our flight to come home, Edward's teacher called me. I stepped out of line and took the phone call. His teacher reported Edward fell off a merry-go-round type toy while on their field trip to the park. His left leg went under the equipment and got stuck briefly.

His teacher said it was impossible to tell if Edward had actually been injured, or if he was just trying to gain sympathy and attention (that's our Edward!). His teacher finally decided he should call us, just so we'd know the full story.

My parents were at our house, so I quickly shared the info with them. Their job was to keep Edward comfortable and determine if I needed to take him to Prompt Care later.

Edward seemed ok — as long as no one attempted to move him; he sat completely still on the couch for five hours until we arrived home. He screamed when we carried him to the bathroom or attempted to straighten his left leg.

I decided a Prompt Care trip was necessary.

The walk-in clinic took one look at him and sent us to the ER for a pediatric radiologist. Edward's injured leg is his under-developed left leg — the one with the limb difference. We needed a specialist to read his x-rays.

So after hours (and hours) of waiting in the ER, Edward had x-rays taken. His femur had a clean and very pronounced break. So much for needing a specialist — I'm pretty sure I could have spotted that break!

Special needs adoption blog.

At that point, the doctors began discussing a cast. There was much debate on whether he would need both legs casted (to stabilize the broken one) or just the left leg. One student assured me he'd probably just have his left thigh and his waist in a cast.

You can imagine my SHOCK the next day when Edward came out of surgery looking like this:

Special needs adoption blog.

Oy vey.

In true Edward fashion, he woke up thrilled with the cast, as it gained him much attention from nurses and other hospital patrons. We were eventually discharged and sent home to figure out life with an immobile child who weighs half as much as I do.

Edward will probably need to wear this cast for three to four weeks. Then the doctors said they'd just put a cast on his full left leg, but after the last time, I'm not sure I believe them!

As you can see, Edward has given us plenty of writing material these past few weeks. And sadly, I don't see that changing anytime soon!

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